I CANNOT BELIEVE IT'S BEEN SO LONG SINCE I BLOGGED...IT MEANS THINGS HAVE BEEN REALLY GOOD!!!
HAD TO SHARE MY HUGE PRAISE REPORT FROM MY BOYS' CARDIOLOGY APPT TODAY...I'VE BEEN ON A HIGH OF ADRENALINE ALL DAY BECAUSE OF IT <3
Well, cardiology appointment went...AMAZING!!!! The new cardiologist is so great and kind and so full of wisdom. One thing he said was when he read their records, he was not expecting them to look and act so great and that their hearts are ...AMAZING. He said we are very blessed, as we had amazing surgeons.
He stated 9 years ago when Thomas (TOF) had his surgery, they did a surgery on him that MANY SURGEONS were not doing (CANNOT REMEMBER THE NAME OF IT, AS I HAD NEVER HEARD OF IT BEFORE)...the surgery they performed on him is something that just started happening recently and that is why he is doing so amazing today. All the narrowing and leakage is MILD...love that word MILD.
Jonathan (TGA/DORV/PA) he is blown away with. He said he was expecting his right ventricle to be enlarged, for there to be leaking around his caortic, and that the conduit from 2 years ago would not be functioning this well...ALL POSITIVE SIGNS THINGS ARE GOING SPLENDID.
He stated for how sick the boys were...we are beyond blessed and it's a miracle how well they are doing today and he says that is because we had amazing surgeons for our men. I told him we were told that Jonathan was a 9.5 out of 10 on complexity and rarity of his heart and we were to be prepared...he said they were wrong...he was a 9.9. WOW!!! The Lord has had his arms wrapped around my little family so much.
Last thing he said...LET THEM LOOSE...he wants to boys running, jumping, playing sports and having fun. This is one thing we try so hard to make sure we allow and we will continue to do so.
I AM ON AN ADRENALINE HIGH OF EMOTIONS AND I'M BEYOND HAPPY RIGHT NOW!!!
LASTLY...THANK YOU EVERYONE...BECAUSE OF YOUR LOVE AND FRIENDSHIP AND EVERYTHING IS WHY WE AS A FAMILY WERE ABLE TO GET THROUGH EVERYTHING WITH OUR BOYS...AND I TRUELY BELIEVE PRAYER HAS HELPED HEAL THEM AND KEEP THEM SAFE :)